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Children's Palliative Care Coalition
           

Pediatric Palliative Care Resources
When expert care is not available        What it's all about        Advocacy Resources 

  What is Pediatric Palliative Care? 
"Pediatric palliative care seeks to relieve symptoms associated with a serious medical condition or its treatment and to enhance the quality of life for children and their families, addressing their unique psychological, social and spiritual needs."
Source: The Institute of Medicine (IOM)3
   
 
  Impact on the family 
This video story shows the impact of pediatric palliative care upon a family: https://www.youtube.com/watch?v=UPJa1Gkhuxo 
 
     
  When expert care is not immediately available:
These Guidelines may help an attending non-specialist physician, or a non-professional caregiver.   
 
  What's it all about?
The need for pediatric palliative care is worldwide. The video looks at issues from an international perspective:
 
     
  More Pediatric Palliative Care Links:   
 

Children Benefit From Palliative Medicine: NHPCO Report

End-of-Live Care Guidelines

Palliative Care -- Conversations Matter (National Institute of Nursing

Advanced Illness Care
: This report on person-centered care for advanced illness has relevant aspects.  
 
 

 
     
Advocacy Resources
  Your State Legislators
Click below to
:
Find your state legislator
Find your state senator
 
     
 
Your Federal Senators  
Peters, Gary C. - (D - MI)  
724 Hart Senate Office Building Washington DC 20510
(202) 224-6221
Contact: www.peters.senate.gov/contact/email-gary
line 
Stabenow, Debbie - (D - MI)  
731 Hart Senate Office Building Washington DC 20510
(202) 224-4822
Contact: www.stabenow.senate.gov/?p=contact
 
     
 

Find Your Federal Legislator in Congress:

Not sure of your congressional district or who your member is? This service will assist you by matching your ZIP code to your congressional district, with links to your member's website and contact page.

 

 
More Advocacy links:

Michigan Government Directory (House and Senate)

University of Michigan 2015 Report on PPC legislation across USA
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Multi-disciplinary Clinics - a path through Medicaid
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Advancing Care for Exceptional Kids Act
(a pending Federal law)
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Wisconsin Pediatric Palliative Care Act
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 Pennsylvania Concurrent Care Act
     


 
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