Our mission is to provide resources for, and to advocate for, medical professionals, volunteers and families caring for children with life-limiting illnesses, and to ensure the availability of compassionate, comprehensive care across the State of Michigan.
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible.
We work to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. >>
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Become a member, attend our events, or donate now to support our important work and strengthen our efforts to collaborate and improve pediatric palliative care services >>
The history of our coalition begins with the story of a little boy named Charlie and his grandfather Richard. In 2010, Richard Graham-Yool and his wife Penny relocated to East Lansing in order to be closer to their daughter Abigail’s family. >>
The Children’s Palliative Care Coalition of Michigan is now an official partner of several other state coalitions. By joining with Pennsylvania, California, Ohio and Connecticut, the CPCC-MI will be able to combine resources to advance the quality of support for seriously ill children and their families. >>
Learning that your child has a life-limiting illness can be devastating. It can be confusing and overwhelming to begin to understand what you may need medically and emotionally. Navigating the system along with your own feelings can be challenging and frustrating. Many parents want to seek out as much information as possible. >>
Providing financial assistance to families facing economic difficulties as a result of having a child with a life-limiting condition or who have had a child die of any cause.
Out of one family’s tragedy, hope and help for others.
DonateSustainable access to pediatric respite support has been stymied by limited reimbursement and educational pathways. However, more hospice and palliative care providers have grown their respite services by pushing for professional licensing and policy reform.
Recognizing a significant gap between community emergency services and the care of medically complex children, the Hand in Hand Pediatric Palliative Care Team at Children's Nebraska, and the organization's Project Austin, collaborated to increase community emergency services awareness and education
A study published in the Sage Journal on Pediatric Palliative Care concerning music therapy concludes that, “Music therapy provides unique benefits for this pediatric population particularly in supporting child and family wellbeing. The therapeutic relationship, interpersonal skills of the therapist and experience in pediatric palliative care are perceived as central to these positive outcomes.”
